So, Teddy has been complaining of pain from his button since fall. When we were in Iowa City for another appointment, I asked if someone from GI could pop over and measure his stoma to see if he needed to size up his button, figuring that would be an easy answer. And as it turned out, his button was quite small and he needed to size up quite a bit.
But the pain didn’t stop. So fast forward to January and I asked again if someone from GI could see us for an actual appointment this time, while we were in town for another appointment. So the same doctor saw us.
And he said that Teddy was faking pain for attention.
And we’d had such a bad day, and this was a the end of that very bad day, and I just didn’t have any “what is your actual problem, you big giant jerk” left in me that day, so I said essentially, “well, that doesn’t seem right, but fine, whatever” and left. (Honestly, the nurse brought me a free parking coupon because that is how beat down I looked. And felt.)
Anyway, so I made an appointment with a GI locally. I didn’t even care which one. (Not Dimeo, who we’ve seen before, because evidently he won’t see you if you’ve also seen another GI doctor, and I don’t put up with that crap. Sorry, but you don’t get to boss me about how many professional opinions I get to seek.) Anyway. I see Peds GIs at this point as completely fungible and essentially worthless, so I decided I didn’t care who we saw. We ended up with some gentleman originally from India who works in the Mercy Subspeciality Office.
Miracle of miracles, he listened to what I had to say about the pain, he asked Teddy about the pain. We discussed the possibility of referred pain from whatever’s causing it to hurt when he pees. We discussed the possibility of constipation (and ruled it out). Discussed what he felt was more likely – evidently you can develop abdominal wall pain from a Gtube that doesn’t really have any specific cause. And I can see that, I guess. It seems like the standard GI cop-out answer, but we’ll accept it as a possibility. He discussed imaging – ultrasound to look at abdominal wall for anything out of the ordinary, and another set of scopes. We’re not going to do scopes. It’s not that bad to warrant all that. But we’re going to do ultrasound. And if he needs another CT or another set of scopes for anything ELSE, then we’ll think about adding on looking at this gtube from inside if he’s still having pain. The doctor is also going to check with their surgery clinic to see if they have any thoughts, since surgery is who mostly handles Gtubes at their clinic.
It was nice to be listened to and taken seriously.