Update

Been a long time.

So…
Sleep Study, check. (Does have Obstructive Sleep Apnea not caused by tonsils or adenoids. Decided to try respositioning him during sleep first before considering surgery or cpap. Haven’t actually done this, though, because sleep.)

Sleep. Awful still. Just… when I say awful, picture super awful. Picture complaining about your newborn, times 5 years. He doesn’t go to sleep. Even when he’s tired and wants to sleep, he can’t. Then once he is asleep, he wakes easily. And though he’s not an early riser, he IS an early riser when you consider what time he went to sleep.

Evaluations at CDD. Check. This will be its own post. Suffice to say for now, that was a rough day. For me. But even though our appointments were THREE WEEKS AGO, I’m still waiting for some reports, diagnoses, and answers to questions. Because CDD staff evidently just cannot be bothered. I hate them with the white hot heat of a thousand suns.

The new drug for motility, Peracitin, is a MIRACLE DRUG. It’s my best friend forever. Me + Peracitin = BFF. He doesn’t vomit any more. I mean, he still gags on food and vomits, but that’s a mechanical issue, and it makes sense. There’s an obvious cause. He doesn’t do the random vomiting.

Allergy testing. Teddy went for allergy testing and we’re still waiting on results. He had a big reaction to something and ped wanted us to get it checked out.

Audiology. Teddy still can’t pass hearing tests. We took him in in August to the school a few times and the first time, he failed big-time. Went to ped to check for fluid in ears – there was some, but there was also a TON of earwax. Washed out the earwax, gave it a few weeks for the fluid to drain, checked on fluid again, it was mostly gone, did another hearing test, still didn’t pass. Didn’t not pass by much, but barely failing is still not passing. Referred to audiology. Audiology… sigh. He passed the mechanical tests – the “is your eardrum vibrating” and “are the cili in your cochlea waving around” ones (which is where he’s failed before). But he didn’t pass the actual hearing test part. But he obviously wasn’t understanding the instructions, and she stuck with it for far longer than I would have before trying a different method. The other method could have worked, but by then, he was beyond ready to be done. So he didn’t respond to several frequencies, but it remains to be seen whether he didn’t respond because he didn’t hear them, or he didn’t respond because he was done cooperating. We’re supposed to go back in 6 months, as though he might be more cooperative at that time. (yeah, it’s ok, you can laugh.)

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