It’s taken me long enough to get this post finished up, yikes.
Thursday morning, super early (like 3?) Teddy woke up absolutely struggling to breathe. He had retractions (where your chest goes in instead of out) and was wheezing in his throat. I watched him for a few minutes and it didn’t get better and he was really really struggling. So I woke Randy up and got his opinion. We both agreed it seemed serious and I was not comfortable driving him to the ER myself. So we called 911. I, frankly, was worried about the Enterovirus that’s going around (he’d had a cold for a day or so) and not being certain how quickly it could get bad in an immune suppressed toddler.
When the EMTs came, they said his lungs sounded fine and it sounded like he might have a bad case of croup.
So, yes, I called 911 over croup. But seriously, the child could not breathe.
The EMTs thought he needed to go to the ER, but we declined to accept a ride from them. The doctor at the ER (same one who did Teddy’s stitches) said he had moderate croup, he was glad we’d come in, and it would not be likely to get better on its own, since the cold air hadn’t done much for it. He said it is absolutely possible for a kid’s throat to swell up so much that they actually cannot breathe, which I didn’t know. He got approval from Iowa City for a big dose of steroid and off we went…
to the other hospital in town for his previously-scheduled skeletal survey. He’s had some concerning labs (really high alk phos again) and has been reporting pain in his limbs, hands, and toes. So, that combination evidently can be pretty concerning. So… skeletal survey, it’s a series of Xrays. He hated it, but got over it pretty quickly. He was mostly scared, and no matter how many times I tell him “no owies,” he just doesn’t really believe me. (Though I’ve never lied about it, I think he and I might have different definitions of what constitutes an “owie.”)
The skeletal survey looked good, so we’re still looking for a cause of the pain + high alk phos. There are a few labs still outstanding that might shed some light on what’s going on.