Our Teddy Bear's Journey

Theodore was born with renal failure. This is his story.

Okoboji

on June 18, 2014

I misspoke in an article I wrote a while back and said we hadn’t been on vacation since Teddy was born. I managed to space off Okoboji when he was 6 months old. We usually go every year (we have a timeshare) but skipped last year. The kids were excited to go back this year. And even though it’s at a lake, with a beach, and the beach is sort of the main activity, and Teddy can’t go in the lake, we all had a great time. 🙂   (Lakes are generally off limits for transplant kids. Too many nasties.)

Beach

We were hoping he’d play in the sand and not really notice the lake that much. Ha. hahaha. That didn’t work out.

Beach
After 10 minutes of crying about wanting to get in the water, Teddy decided it would be OK to go for a walk around the docks with mom. He was annoyed mom make him hold her hand.

Beach

There was more crying and attempting to jump into the lake. Then he discovered the wheelchair ramp dock, which was super awesomely fun.

Beach

He was watching his siblings frolic in the lake. I was afraid he was going to start throwing a real honest to goodness tantrum. He didn’t.

Beach

Gross. She got out of the lake, then laid in the sand while dripping wet and proceeded to cover herself.

Pool

This is the outdoor pool, and Teddy really just wanted daddy to hold him in the water. He started getting sleepy and had daddy hold him cradle-style and just float around in the water. I thought he was going to fall asleep, to be honest, but he didn’t.

Pool

Genna is far more timid about the water, but was very brave and got to the bottom step by herself.

Pool

This the indoor kid pool. Teddy is NOT timid about the water. He was like, “oh, water up to my armpits? Ok.” He had a really hard time maintaining his balance and slipped under the water several times. No biggie. I mean, I was right there and fished him out, but he was totally ok with it. That said, he was not interested in anything that did not involve his feet on the floor of the pool. No floating. No me pulling him by his hands. No floating on noodles. Just standing and walking.

Pool

Genna finally worked up the courage to use her pool noodle to float with without keeping a foot on the bottom. She wouldn’t go in the shallow end of the big pool, but did kick around the kid pool quite a bit.

Chalk

Genna’s butterfly.

Chalk

Teddy preferred to draw on the deck.

Chalk

And Wally.

Chalk

More deck.

Sidewalk Chalk

Beach

This day at the beach was better because Genna stayed with us and played in the sand for a while instead of going in the lake right away. This picture shows Genna making a sand castle and Teddy appearing to be minding his own business and playing on his own. It’s all an act.

Beach

He was just waiting for an opening to knock Genna’s castle down. He can’t think of any reason anyone would build anything unless it was so that he could knock it over.

Beach

What?

Beach

Mini Golf

Wally got a hole in one playing mini golf.

Mini Golf

DSC_0149

Teddy threw his golf ball in the bushes and then decorated the sidewalk.

 

Last time we were at Okoboji, I was pumping all the time, trying to keep up with his exorbitant needs. The one time I took him to the pool, he basically hated it, everyone in the area stared in shock and horror at his scarred body with the PD cath, Gtube, port, and dressings, and I had to do a sterile dressing change as soon as we got back. In fact, I had to do several sterile dressing changes during our trip.

It was so nice this year to not have to do sterile dressing changes!! And to not have the horrified stares from people. People still stared, but the look you get from people who see a Gtube (though they likely don’t know what it is) is markedly different from the look you get from people when they see your 6 month old’s little body absolutely covered in hardware and bandages.  And yes, screw them, but even so… I’m not usually one to let the looks from other people get me down, but that was tough to take.

Cutie Pie

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