I appreciate that you have a program in place to reach out to your insureds after a hospitalization, and that you have a special program for transplant patients. It’s really probably a good idea.
I realize 99% or more of your transplant recipients are adults. And I realize that adults are MUCH different from kids. One thing you need to understand is that by the time a child receives a transplant, that child’s parent has generally grown very comfortable with calling up her child’s doctors with questions or concerns. That parent, in fact, probably has the phone number memorized, even if she can’t for the life of her remember her own sister’s phone number – or her best friend’s, for that matter. That parent probably also knows how to reach her child’s doctors via text or email, as well. And has probably talked to them in the middle of the night at least once. And has grown comfortable with the idea of waking up whoever needs to be woken up.
Because I realize that you’re trying to do a good thing, I will do my best to be cheerful and not grumpy when you call me every month for the next year to ask if I have any questions about my child’s discharge instructions, or to school me on wound care (no, I’m not washing with soap and water, but I am following the surgeon’s instructions, thankyouverymuch). Or to grill me on medications or ask if I think he’s drinking enough and maintaining an adequate activity level. I won’t respond, “no, but if I did, I’d just call the DOCTOR.”
Because you’ve never been a transplant mom, you don’t know that the second I thought something was off, I’d be on the phone. You don’t know that, when I wasn’t 100% certain on the new dose of Prograf, I called our doctor at 9:00 pm at home to ask, and I didn’t feel one tad bit of self-conscious about it. You don’t know that, if I couldn’t remember or wasn’t sure about something, I’d call.
I know adults aren’t like that.
But transplant moms, at least the ones I know, absolutely are.