Our Teddy Bear's Journey

Theodore was born with renal failure. This is his story.

Vaccine Deficiency

on February 11, 2013

I’m sick of seeing this on Teddy’s chart. What it should say is “Teddy has a well-educated, caring mother who has striven to do what is best for her child.” And perhaps in the details section, it could include some verbiage about the CDC’s recommended schedule being based on the desire to do the greatest number of shots in the shortest amount of time for compliance reasons (since well child visit attendance drops off the older a child gets), rather than looking at what’s really best for the child’s overall health.

Yeah, I haven’t let him have shots when he’s been recovering from an infection. I think his body has enough to deal with fighting off a bloodstream infection to not also have to shoot him with chemicals and viruses.  I’ve only allowed a max of 2 shots at a time (we were doing just 1 at a time, but then he had SO many infections, that got to be difficult to continue) because, again, I think shooting him up with THAT MUCH stuff at one time is just ridiculous.

Never mind that the CDC schedule is “recommended” not “required,” and therefore it’s technically not possible to be objectively “deficient.”

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4 responses to “Vaccine Deficiency

  1. mariska says:

    can I ask you: with Teddy’s intensive care regiment, do you have any freedom to reject this or that vaccine entirely? a friend’s son has been diagnosed with a rare mitochondrial condition, and the doctors now say that the mother “must” vaccinate fully. thank you!

    • sarahtar says:

      ok, you can ALWAYS reject any/all vaccines or any/all recommended treatment options. There might be consequences such as that doctor refusing to work with your child any more, or being dropped from a program, or being rejected as a transplant recipient.

      In our case, I could refuse, but the consequence would be no transplant – at least at our transplant center, and probably at any transplant center.

      In Teddy’s case, because he will be immune suppressed for the life of his transplanted kidney, I actually think the vaccines aren’t a bad idea for him. With healthy kids, I am comfortable relying on their healthy immune systems to help them if they come into contact with communicable illnesses – whether those illnesses are ones that we routinely vaccinate for or not. I think NOT having the vaccines makes their immune system stronger, even. But with Teddy, I’m not going to be able to count on his immune system fighting off things it comes into contact with as well as a healthy person’s would. Whereas I’m fairly confident that whooping cough, for example, would be the minor illness it typically is if my older two got it, I’m also fairly confident that it would be much less likely to be a minor illness if Teddy got it. Further, I don’t think that the vaccines will harm his system any more than the immunosuppressants he will take.

      So, she needs to find out WHY they’re making the recommendation in the first place – is there something particular about her son, or is it just that they would say that to everyone and it’s not anything particular to their son? If it is something particular to him, then she needs to decide if she agrees with their recommendation. Sometimes it’s a hard conversation to have with doctors, and sometimes it’s a hard conversation for doctors to entertain, because they don’t like to explain such basic no-brainers (to them) as vaccinating, but keeping a calm demeanor and just asking very open-ended questions until you get an answer that satisfies can help a lot.

      • mariska says:

        thank you, this is so very helpful. Teddy and your whole family are in our thoughts and prayers. {{{ }}}

  2. floscarmeli says:

    hear hear!

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