Our Teddy Bear's Journey

Theodore was born with renal failure. This is his story.

An un-great Clinic Visit

on March 21, 2012

We had our clinic day today. Nearly ran over two deer (I swear, coming around the corner, the first one looked like a giant muskrat and I was so flummoxed by this, I didn’t see the second one until it was nearly too late). Had trouble staying awake driving there. Not doing 8:45 appts any more.

His new PowerPort won’t draw. It flushes OK, doesn’t draw. We were hoping it would be better today (it didn’t draw well last week, either), but it wasn’t. So he had a line study done (X-Ray #867)

flouroscopy

(This is the restraint they use for flouroscopy for him)

bad port
This is an image from the line study.  You can see the big port there (the big rounded triangle), then the line that comes out of it and runs across his chest to the left (his right). It goes into his heart.

The report says: Findings: A subclavian port catheter is in place, and the distal tip is pointing laterally at the superior vena cava without a caudal turn.

It should have a caudal turn (it should turn down to follow the vena cava). It doesn’t. It’s actually resting against the vessel wall. That’s bad. That’s why it will flush but not draw. It will erode the vessel if left there.

So, plans are kind of up in the air, but it’ll likely have to come out (surgically). May or may not be replaced. And his BUN is up again (mid-50s) this week, so he may start dialysis soon (yeah, we say that a lot, but it’s true a lot, too) and that will sort of make the decision on a port for us.

2012-03-21 12.17.45

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3 responses to “An un-great Clinic Visit

  1. Poor little guy, I was really hoping the port would work out better for him. Jairden’s port was on the right side and was in the artery in the right side of his neck. Is there any specific reason that it has to go into his heart and not just into an artery?

    J has his three month scans next week so we are hoping for a smooth day. We also have to drive a ways (3 hours) to get to Children’s in Minneapolis so I know how long those drives can get. We have always made sure we have afternoon appointments.

  2. sarahtar says:

    Well, there was a reason it couldn’t go into his right side that had something to do with the surgeon’s opinion and the Broviac and his veins and I honestly don’t remember why it has to go where it is.

    Our regular clinic visits are early afternoon, but when he has to have an infusion and line study, we’re at the mercy of the schedules of ped Xray and the ped specialty clinic.

  3. Christy Helm says:

    He is such a cutey pie! I just wanted to crawl through the computer and give his adorable little cheeks a big kiss!

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