Discovered the US Renal Data System earlier this week, and their query-able RenDER database. Holy buckets. Bookmarked that for when I have free time. A treasure trove of nerdy statistics.
It gave me these numbers: 4th quarter 2009, there were 7,738 patients with ESRD ages 0-19. 571,414 ESRD patients of all ages.
The census bureau says that the 18 and under population in 2010 was 74,181,467; total population 308,745,538. So if I estimate that the US population that is 0-19 is 78,302,659*, then that means that the incidence rate of ESRD in ages 0-19 is .009%. The incidence rate of ESRD in the general population is .18%
*I just divided the 18 and under population by 18 to get an extremely rough estimate of the number of people in each age, then added that to the total 18 and under population.
263 children ages 0-1 had ESRD in the US in 2009, with 848 children 0-5 having ESRD. (With a US Census Bureau population of 20,201,362 ages 0-5 in 2010, that amounts to .0042%)
The incidence rate of children 0-5 with ESRD in Iowa in 2009? 0.
(For the record, a Rare Disease is defined as one that affects fewer than 200,000. I would say that pediatric renal failure is rare, but ESRD is not overall a “rare disease” since the adult incidence of ESRD is so high.)