Our Teddy Bear's Journey

Theodore was born with renal failure. This is his story.

Not a Great Clinic Visit

on January 26, 2012

So, yesterday’s clinic visit wasn’t super great.

He failed his hearing test. (6th one) He passed in one ear, failed the other. Plan is to retest again in another month, because the next step in diagnosing what might be wrong involves being under a general anesthesia and I’d like to avoid that if possible.

Labs went OK. She was able to get it with just one poke, but she nearly gave up. The phlebotomist didn’t personally feel comfortable saying that she thought the Broviac was ready to come out (because the draw was still pretty hard), but the dialysis nurses were more positive about taking it out. I’ll admit, I was still pretty on the fence. Everyone asked me what I thought, including Dr. Jetton, who also asked last week, which I really really appreciate.

Weight was good, up about 20 g. Nutritionist came in to chat, she was good with leaving things as they are. She’s pretty down on natural medicine, though.

Dressing change went good. They showed me how to do it at home now. We’ll do it 3 times a week, just like the Broviac. Loaded me up with medical supplies.

Then labs came back. The CBC comes back first, always, and showed that his hemoglobin was up over 10, which was AWESOME because it meant no Aranesp shot.

Then the rest. Creatinine up, BUN way up, potassium up above normal range, several other things outside of normal ranges. So, Dr. Jetton ended up saying that the Broviac was definitely not coming out, because she thought chances were pretty good that we’ll be admitted next week to start dialysis.

Sigh.

But, you know, Teddy’s always done better than they’ve expected. If things look better, or even just hold steady, they’ll let us go home next week. I think that is their preference (not just to be nice to us, but looking at their own staffing needs – they’ve got several kids starting dialysis next week already).

Dr. Brophy, on the day we were discharged from the NICU, said he thought we’d be back in less than a month. Well, it’s been more than a month, so at least there’s that.

We did learn that the other baby who had been in the NICU with kidney failure was able to go home without a catheter, even. 🙂

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One response to “Not a Great Clinic Visit

  1. Jamie Burdorf says:

    The WAITING is the hardest part! It sucks being in limbo. Whatever happens, happens and you just adjust as a family and make it work. Hang in there!

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