Well, this week, Teddy’s clinic visit went ok. Last week, his hemoglobin was 7.7, so they gave him an aranesp shot to help stimulate red blood cell production. (kidneys usually produce a hormone that does this.) This week, it had come up somewhat, to 8.1. They gave him another aranesp shot.
His BUN and Creatinine continue to sneak down, ever so slowly. Actually, creatinine stayed the same, but BUN came down a smidge. (BUN 55, creatinine 2.4). His electrolytes were all more or less in acceptable ranges.
The big problem was his weight. He didn’t gain hardly anything between last week and this week, which made the nephrologist nervous about needing to start dialysis, and the nutritionist nervous about his diet. However, last week, I had moved him to all breast/no bottles (of breastmilk). He just doesn’t have the stamina to nurse for long enough each session, and I had been concerned about it all week. I asked if we couldn’t just wait a week before taking any drastic measures, and I would go back to bottles of pumped milk, to make sure he’s getting enough. Nursing is work, the bottles are fast flow, so they require basically no work.
I’m pretty discouraged about that. Everyone keeps telling me that actually breastfeeding him isn’t important, blah blah blah. And yeah, I suppose. But this is important to me, even if it isn’t to anyone else. Not just because exclusive pumping means that approx. 1 hour out of every two is spent pumping, feeding, and washing bottles. Not just because it means that I have to get up out of bed and fully awaken every 2-3 hours overnight and spend that hour pumping, feeding, and taking care of bottles. But because, dammit, I want ONE THING that I want.